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The Life of Adolescent Patients with Complex Congenital Heart Disease

Journal of Korean Academy of Nursing 2010³â 40±Ç 3È£ p.411 ~ 422
KMID : 0806120100400030411
À̼±Èñ ( Lee Sun-Hee ) - À»Áö´ëÇб³ °£È£´ëÇÐ

±è¼Ò¼± ( Kim So-Sun ) - ¿¬¼¼´ëÇб³ °£È£´ëÇÐ

Abstract

Purpose: In the present study, an analysis of the life of adolescents with complex congenital heart disease (CHD) was done using grounded theory. Consideration was given to the socio-cultural context of Korea.

Methods: After approval from the institutional review board of Y hospital, 12 patients ranging in age from 14 to 35 were recruited. Data were gathered using in-depth interviews. Theoretical sampling was performed until the concepts were saturated.

Results: The results confirmed the life of adolescents with complex CHD as a ¡¯journey to finding uniqueness of oneself as a person with CHD¡¯. The life consisted of 3 stages. In the crisis stage, participants had a feeling of threat to self-existence, and made an effort to be the same as others. In the self-recognition stage, participants who had sufficient role-performance built self-esteem while those who did not fell into self-accusation. In the self-establishment stage, participants who reached sufficiency in independence and knowledge planned the future, whereas those who did not conformed to the realities of life.

Conclusion: The results of present study provide help in understanding the experiences of adolescents with CHD and provide a basis for developing nursing intervention strategies for these patients.
KeyWords
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Adolescent, Congenital heart defect, Grounded theory, Life
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